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- Rare diseases in international nomenclatures
- Data on rare diseases: which annotations to support R&D?
- Bioinformatics for rare diseases: Promises and challenges
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- State of the art of disease specific registries in Europe: Successes and challenges
- State of the art of national data repositories 
-Patient data for the evaluation of the clinical-added value of orphan drugs: Possible mechanisms for collaboration at EU-level
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- National centres of expertise for rare diseases: current situation in Europe and recommendations from EUCERD for the implementation of centres of expertise
- Networking between expert centres: Where do we stand
- The testing landscape in Europe: Challenges and solutions
- The Cross-Border Health Care Directive and its implications for rare diseases
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